Saturday, January 14, 2017

Day 12: Looking For Answers

Today is the day we travelled down to U of M for my long awaited appointment. I will start off with saying, I am not meant to live in a big city! Oh, the traffic!! I wasn't driving, and I was stressing out! Frank liked it down there, he said he could get use to the traffic, mainly because there was no snow, and it was 11 degrees warmer. We saw 3, cars in the ditch in a 3 mile stretch! 2, were rolled!! Crazy drivers down there! LOL!! We got honked at like 3, times.....oops! hahaha! Ann Arbor is such a beautiful town, and if I wasn't so stressed out looking for the place, I would have gotten some photos. Maybe next time?!

My Doctor was wonderful!! She made me feel respected, and listened to what I said, and didn't think what I said was non sense. And she even uses google, too! It was nice because it was only Me, Frank, and the Doctor in the room compared to last time where there was 5-6 people in the room. We went over paper work, and discussed my symptoms, and what tests I have had done. She did the normal rheumatologist checks, and also did a Schirmer's test to check my eyes, and ordered a bunch of blood tests, and X-rays, and this time of my hands & knees! She also is putting in a request to see a GI Doctor, and will most likely need a colonoscopy done. It's a test I dread, but I'm sure it will help figure out what is really wrong with my gut. I have had belly issues for years, and always put the blame of having no gallbladder. She diagnosed me with Chronic Fatigue Syndrome, and Polyarthalgia, she did say that stress could be contributing as well. I also have very dry eyes, and am hyper mobile.

I still have questions but those may be able to get answered by the GI Doctor. I asked her about POTS syndrome since I get dizzy a lot, especially when standing, or am in the shower, or if I move my head wrong at times. I also have a hard time breathing sometimes like in the shower, of I get exerted fast. She said that I could have a tilt table test done, but she couldn't perform that test, I would have to go to another Doctor. And just said if I did have it, there isn't much you can do for it. I also asked about EDS, Ehlos Danlos Syndrome, which is a connective tissue disease. I asked because I had a lot of the symptoms, exempt one and that was the hyper mobility. I also asked because my son has symptoms of this as well. My son & daughter had to get an EKG done this past Summer, and now I am going to be looking more in to this.....even if it's just to make my head happy.

Sometimes you need to create your own luck.


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